Press releases

A survey across eight European countries shows that consumers are more cautious about sharing their health data than legislation currently under discussion at EU level proposes. The findings underline that EU legislators urgently need to better reflect people’s preferences in the European Health Data Space Regulation which is already under discussion by the EU institutions. This is essential for people to feel confident about sharing their health data to improve healthcare provision and make their data available for research and public health purposes.

The European Commission proposals published today to reform the EU’s medicines and pharmaceutical legislation are a good step in the right direction by moving the EU into a more active role to address numerous market failures. However, set against a backdrop of fairly widespread medicine shortages and increasing pressure on state budgets to reimburse people’s medicines, these proposals will have to go further to resolve the problems.